Head, Eyes and Heart
Although the title might suggest some deep metaphor, we are too tired to mean anything other than the literal sense. March officially marks six months from our initial appointments after James’ first seizures, so we are on the path of follow-ups now. But what would life be without a little newness to it? Enter James’…
Fifth Time’s a Charm
James had his fifth EEG today. We were informed by the EEG tech that our boy “wins the award for the most EEGs in a short period of time” which isn’t exactly the first award we pictured him winning. However, we are starting to get the hang of them, from bedtimes to strategies to keeping…
The Spasms Strike Back
Unfortunately this isn’t the update we were hoping to make. James has had four more episodes of eye deviation that we had mentioned in the last post. This indicates that for whatever reason, his infantile spasms are trying to come back. Now the hunch is that James’ body is fighting against his current medication, which…
James' Journey with TSC 